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How IDEA4RC is contributing to the EURACAN Registry – a webinar for patients
On December 4, 2024, the European Patient Advocacy Groups of the EURACAN network participated in a webinar about IDEA4RC’s contributions to the EURACAN registry. The session featured Annalisa Trama, an epidemiologist at the National Cancer Institute of Milan and the coordinator of both the IDEA4RC project and the EURACAN registry. The EURACAN registry began in…
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IDEA4RC webinar series
The IDEA4RC project is developing innovative solutions to create a health data ecosystem on rare cancers. To find out more, join our webinar series: Each meeting will be held online. A registration link will be shared as the date approaches. IDEA4RC partners wish to engage in an open dialogue with a wide and diverse group…
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IDEA4RC at Connect To Win 2024
On November 26th, 2024, Annalisa Trama, epidemiologist at the National Cancer Institute of Milan and IDE4RC coordinator, participated in the annual meeting of the DIGital Institute for Cancer Outcome REsearch (DigiCore), Connect To Win, which was held in Utrecht. Trama presented IDEA4RC activities as a part of the DigiCore Real-World Evidence (RWE) projects. They include:
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IDEA4RC at MIE24
IDEA4RC members participated in the 34th Medical InformaticsEurope Conference (MIE 24) that was held in Athens from August 25th to 29th. The theme of the congress was “Digital Health and Informatics Innovations for Sustainable Health Care Systems”. On August 27th, IDEA4RC partners held the workshop “Towards a European Cancer Minimum Data Model and European Oncology…
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IDEA4RC at EASST4S2024
On July 16th 2024, Claudia Egher, researcher at Utrectht University, presented the work done so far in IDEA4RC together with Susan van Hees and Wouter Boon during the panel “Unexpected ways of knowledge production. Spaces for co-creation in Research Infrastructures” at the quadrennial joint meeting of the European Association for the Study of Science and…
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IDEA4RC launches its Community of Interest starting from patients
Since the inception of IDEA4RC, the involvement of a large and diverse group of stakeholders has been deemed crucial for the success of the project. Values and expectations of people who can benefit from the IDEA4RC data ecosystem have been considered through focus groups and interviews, but now, as the platform begins to take shape,…
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Impact of HL7 FHIR in digital healthcare ecosystems for chronic disease management
Reviewing the scientific and gray English literature from 2017 to 2023, the authors ended up with 93 scientific papers on the employment of HL7 FHIR for chronic disease management and 35 HL7 FHIR Implementation Guidelines on the same topic. They concerned primarily cancer (45%) cardiovascular diseases (more than 15%) and diabetes (almost 15%). Articles come…
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IDEA4RC at EUSPRI 2024
Claudia Egher, researcher at Utrecht University, participated in the annual conference of the European forum for Studies on Policies for Research and Innovation (EUSPRI), hosted by the University of Twente. This year focus was “Governing Technology, Research, and Innovation for Better Worlds”. Egher presented the work done so far within the IDEA4RC project in collaboration…
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An open-source multilingual LLM for the medical domain
I. García-Ferrero, et al, “MedMT5: An Open-Source Multilingual Text-to-Text LLM for the Medical Domain”, Proceedings of the 2024 Joint International Conference on Computational Linguistics, Language Resources and Evaluation (LREC-COLING 2024). Full text available here. Abstract Research on language technology for the development of medical applications is currently a hot topic in Natural Language Understanding and…
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IDEA4RC at SPORL-CCP
On 27 April 2024, Pablo Parente Arias will present IDEA4RC at the 71th National Congress of the Portuguese Society of Otolaryngology and Head and Neck Surgery (SPORL-CCP).
Intelligent ecosystem to improve
the governance, the sharing,
and the re-use of health data for rare cancers