IDEA4RC

Intelligent ecosystem to improve
the governance, the sharing,

and the re-use of health data for rare cancers

Newsletter

IDEA4RC Webinar Series

January 9, 2025

IDEA4RC Newsletter

IDEA4RC Community of Interest

Dear participants,

we are glad to inform you that IDEA4RC has launched a Webinar Series open to anyone interested in the project. Here is the schedule of the whole IDEA4RC webinar series:

1.
January 20th, 2025 h 5:00-6:00 p.m. CET

Towards an intelligent data ecosystem for rare cancers:
the IDEA4RC project
Annalisa Trama (Istituto Nazionale dei Tumori), cancer epidemiologist, IDEA4RC and EURACAN Registry coordinator 

REGISTRATION LINK: https://zoom.us/webinar/register/WN_4U8JJ8DiRpK96woigbRe9Q

 

2.
February 19th, 2025 h 5:00-6:00 p.m. CET

Automatising data extraction and securing data storage:
the data flow in IDEA4RC

Eugenio Gaeta (Universidad Politécnica de Madrid) and Unai Zulaika (Universidad de Deusto), IT experts in IDEA4RC

 

3.
March 26th, 2025 h 5:00-6:00 p.m. CET

The European Health Data Space (EHDS): the new EU regulation on the re-use of health data

Vasiliki Tsiompanidou (European Centre for Certification and Privacy), legal expert in IDEA4RC

 

4.
April 28th, 2025 h 4:00-5:00 p.m. CET

Data altruism: principles and IDEA4RC solutions to enable data donation

Ioanna Drympeta (Centre for Research and Technology Hellas), legal informatics expert in IDEA4RC

Vasiliki Tsiompanidou (European Centre for Certification and Privacy), legal expert in IDEA4RC

A registration link for webinar 2, 3, and 4 will be shared as the date approaches. 

The initiative aims to raise awareness about the project within the broader healthcare community, so whether you are a researcher, a clinician, a software engineer, a patient advocate, a legal expert or any other healthcare actor, we encourage you to spread the word among your colleagues, collaborators, and friends! Download the programme.

We look forward to meeting and discussing IDEA4RC with you during the webinars.

 

IDEA4RC Team