IDEA4RC

Intelligent ecosystem to improve
the governance, the sharing,

and the re-use of health data for rare cancers

IDEA4RC at Connect To Win 2024

On November 26th, 2024, Annalisa Trama, epidemiologist at the National Cancer Institute of Milan and IDE4RC coordinator, participated in the annual meeting of the DIGital Institute for Cancer Outcome REsearch (DigiCore), Connect To Win, which was held in Utrecht.

Trama presented IDEA4RC activities as a part of the DigiCore Real-World Evidence (RWE) projects. They include:

  • CAN.HEAL, that wishes to set the framework for integrating and aligning the Genome of Europe biobanking initiative into public health genomics for cancer;
  • EUonQol, that develop, pilot and validate a patient-driven, unified system for the assessment of quality of life based on evaluations and preferences of cancer patients and survivors,
  • CCI4EU, that aims at reducing inequalities across Comprehensive Cancer Infrastructures in Europe;
  • DigiONE Pilot, a pilot European learning health system in precision oncology, that is now expanding from 6 to 15 clinical centres thanks to the I3 program of the European Regional Development Fund.