An intelligent data ecosystem for rare cancers

IDEA4RC aims at developing an IT infrastructure to facilitate the sharing and re-use of health data among clinical centers to promote research on rare cancers and improve patients’ access to high quality care. Our challenge is building a new tool to overcome interoperability issues and make it easier to comply with privacy regulations.

IDEA4RC is being carried out by 25 partners from 12 European countries and coordinated by the Istituto Nazionale dei Tumori in Milan (Italy). The project started in September 2022 and is funded by Horizon Europe.

The IDEA4RC project is developing innovative solutions to create a health data eco-system on rare cancers. To find out more, join our webinar series

1. January 20th, 2025 h 5:00-6:00 p.m. CET

Towards an intelligent data ecosystem for rare cancers: the IDEA4RC project

Annalisa Trama (Istituto Nazionale dei Tumori), cancer epidemiologist, IDEA4RC and EURACAN Registry coordinator

REGISTRATION LINK: https://zoom.us/webinar/register/WN_4U8JJ8DiRpK96woigbRe9Q

2. February 19th, 2025 h 5:00-6:00 p.m. CET

Automatising data extraction and securing data storage: the data flow in IDEA4RC

Eugenio Gaeta (Universidad Politécnica de Madrid) and Unai Zulaika (Universidad de Deusto), IT experts in IDEA4RC

3. March 26th, 2025 h 5:00-6:00 p.m. CET

The European Health Data Space (EHDS): the new EU regulation on the re-use of health data

Vasiliki Tsiompanidou (European Centre for Certification and Privacy), legal expert in IDEA4RC

4. April 28th, 2025 h 4:00-5:00 p.m. CET

Data altruism: principles and IDEA4RC solutions to enable data donation

Ioanna Drympeta (Centre for Research and Technology Hellas), legal informatics expert in IDEA4RC
Vasiliki Tsiompanidou (European Centre for Certification and Privacy), legal expert in IDEA4RC

A registration link for webinar 2, 3, and 4 will be shared as the date approaches.